"The Lili Claire Foundation was established to enhance the lives of children living with Williams Syndrome, Down Syndrome, Autism and other neurogenetic disorders, while providing hope and resources for the families who love them. The foundation was created in 1998 to honor the memory of Lili Claire Resnick, who was born with the neurogenetic birth defect known as Williams Syndrome. Lili died when she was five and a half months old after undergoing an eighteen-hour open-heart surgery to correct a severe heart condition associated with the disorder."
